Hi Amy if you hadn't noticed the film is now available again for you to watch!
I have been sick w/ CFS/ME for 17 years. I have experienced everything this movie is about. I have trouble with remembering things and how to communicate my needs. I called an ambulance and when they got there they asked me what was wrong. I told them I was unable to function due to chronic fatigue syndrome and I needed assistance. I was in excruciation pain. They told me to just deal with it and left me.
That was by far the best documentary I have seen about M.E. It really sum's up how misunderstood the illness is . I became Ill in 2000 and wasn't given a diagnosis until 2002. I had many years lonely years of lying in a dark room in intense pain with not even sleep as a relief from the agony I was In .
This should most definitely be seen by all practitioners in psychiatry and general medicine. Great documentation of the mistreatment and stigma that ME-patients are met with.
Just watched this truly harrowing. I have M.E. nowhere near as bad as some enough to stop me from working but the wife is severely arthritic so ironically I'm actually her carer when I can barely take care of myself. Getting no help from my GP is horrible and knowing you can't push the subject without being labelled a crank is infuriating.
PLEASE PLEASE PLEASE let us see this- I missed it the first time, and the world desperately needs to know about this devastating disease which I myself also have!
Please let us know when and how to see this again in the U.S. My parents and friends really want to see this film.
One of my favorite films of all time! A tour de force. The stories of the abuse of children with ME by British psychiatrists is truly chilling. Leaves you moved and hungering for more of this wonderful film.
Very well done movie. I cringe to think people are being so neglected when so very ill. My illness is bad enough and has robbed me largely of who I thought I was, and enforced great limitations on me ....and yet, I am grateful. Grateful for being somewhat functional [even if it is a haf-life] The taped conersations w/ sophia Mirza were truly chilling. I wish so much for more medical understaning,more socital understanding,[less abuse please,lets face it many people are being abused, especially the most vulnerable :the extremely ill and children]
I didn't realize that things in the UK were quite this bad. Shame on the "professionals" who have so badly mistreated these patients just to satisfy their own personal beliefs while completely ignoring the evidence right in front of them!