I have been sick w/ CFS/ME for 17 years. I have experienced everything this movie is about. I have trouble with remembering things and how to communicate my needs. I called an ambulance and when they got there they asked me what was wrong. I told them I was unable to function due to chronic fatigue syndrome and I needed assistance. I was in excruciation pain. They told me to just deal with it and left me.
That was by far the best documentary I have seen about M.E. It really sum's up how misunderstood the illness is . I became Ill in 2000 and wasn't given a diagnosis until 2002. I had many years lonely years of lying in a dark room in intense pain with not even sleep as a relief from the agony I was In .
Just watched this truly harrowing. I have M.E. nowhere near as bad as some enough to stop me from working but the wife is severely arthritic so ironically I'm actually her carer when I can barely take care of myself. Getting no help from my GP is horrible and knowing you can't push the subject without being labelled a crank is infuriating.